Dysautonomia Sucks

[jeshyr]

I have been nauseated most of today and yesterday. And ... well, enough recently that I added it to my symptom tracker as a thing to watch. It's not severe, it's fairly mild, but it's really bloody annoying.

It's a thing the dysautonomia has done in the past - years ago now - for months on end and i really REALLY hate it. It trips over my vomiting phobia and really screws with my head. So yeah, dear body quit with that already.

r

Comments

[jesse_the_k]

:(

[acelightning]

*hugs*

[sheramil]

i swear to J.R."Bob" Dobbs, i learn more new words reading your blog than anywhere else.

[dadi]

ughh.. I hate that, I get periods of that with the Crohn´s too. It just takes away so much energy....

[damiana]

My daughter's got dysautonomia (with Ehler's Danlos Hypermobility) and the nausea is usually a sign that her electrolytes are out of balance.

I found these--they're capsules of electrolytes that are specifically designed for extreme athletes--and they really seem to help a lot. Maybe something like that would be helpful for you?

[jeshyr]

I do use electrolyte replacement stuff but I haven't tried it specificallly when I feel sick - I'll let you know how that goes. I can't afford stuff like those caps, so I use a much cheaper home-made version which is fairly similar.

Welcome, BTW. I have EDS and MCAD too as well as Dysautonomia, in case you don't know. How did you find me?

Cheers,
r

[damiana]

Well, first I met you on the national poly list. Then we were on the Crunchy Frog list together. Now I've got you friended on LJ, and after I saw this post there, I wanted to come here to comment. :-D

[shehasathree]

That sucks. What kind of symptom tracker do you use? I tend to get overwhelmed whenever I try to track stuff for more than a few days (or focusing on one particular symptom for a particular reason).

[jeshyr]

I use PatientsLikeMe, it's pretty easy to fill in and it doesn't care if I skip a while and then start tracking again.

[shehasathree]

Thanks!