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Sep. 6th, 2013 08:34 pmOMG tomorrow's Aussie election cannot come soon enough. I am so much over it it's not funny!! Do not want to hear about anything political for the next year at least... UGH.
I may spend the next 48 hours in bed with funny cat gifs and refuse to come out, or I may trot down to the local primary school to help a friend hand out GetUp "this is what the candidates said they stand for" cards which I do think is a good thing.
In either case, this week I deserve a medal for not giving up in horror and refusing to do anything, I think.
Since my saline IVs ended I'm back being much more fatigued and much more orthostatically intolerant. On the saline IVs, even though I was travelling to the Alfred 3x per week, I could sit up more in my recliner or wheelchair, stand up more and walk around the house more easily, shower independently without needing help getting dry or needing a nap to recover, and I wasn't sleeping so much during the day. I also had fewer migraines while I was getting the IVs, but I can't think why that might happen so I suspect it was more coincidental than anything... By each Friday I was pretty exhausted from the travelling, it wasn't really sustainable to travel that much, but it's been awful to go back to nothing!!
My doctor wrote up an order that I could pretty much choose when I want to go and get more IVs, up to three times a week. I'll definitely get one when I'm going into the Alfred anyway for an appointment, and I think perhaps once a week in weeks where I don't have any appointments. I'll see how I go.
I may spend the next 48 hours in bed with funny cat gifs and refuse to come out, or I may trot down to the local primary school to help a friend hand out GetUp "this is what the candidates said they stand for" cards which I do think is a good thing.
In either case, this week I deserve a medal for not giving up in horror and refusing to do anything, I think.
Since my saline IVs ended I'm back being much more fatigued and much more orthostatically intolerant. On the saline IVs, even though I was travelling to the Alfred 3x per week, I could sit up more in my recliner or wheelchair, stand up more and walk around the house more easily, shower independently without needing help getting dry or needing a nap to recover, and I wasn't sleeping so much during the day. I also had fewer migraines while I was getting the IVs, but I can't think why that might happen so I suspect it was more coincidental than anything... By each Friday I was pretty exhausted from the travelling, it wasn't really sustainable to travel that much, but it's been awful to go back to nothing!!
My doctor wrote up an order that I could pretty much choose when I want to go and get more IVs, up to three times a week. I'll definitely get one when I'm going into the Alfred anyway for an appointment, and I think perhaps once a week in weeks where I don't have any appointments. I'll see how I go.
