(no subject)
Sep. 6th, 2013 08:34 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
jeshyrOMG tomorrow's Aussie election cannot come soon enough. I am so much over it it's not funny!! Do not want to hear about anything political for the next year at least... UGH.
I may spend the next 48 hours in bed with funny cat gifs and refuse to come out, or I may trot down to the local primary school to help a friend hand out GetUp "this is what the candidates said they stand for" cards which I do think is a good thing.
In either case, this week I deserve a medal for not giving up in horror and refusing to do anything, I think.
Since my saline IVs ended I'm back being much more fatigued and much more orthostatically intolerant. On the saline IVs, even though I was travelling to the Alfred 3x per week, I could sit up more in my recliner or wheelchair, stand up more and walk around the house more easily, shower independently without needing help getting dry or needing a nap to recover, and I wasn't sleeping so much during the day. I also had fewer migraines while I was getting the IVs, but I can't think why that might happen so I suspect it was more coincidental than anything... By each Friday I was pretty exhausted from the travelling, it wasn't really sustainable to travel that much, but it's been awful to go back to nothing!!
My doctor wrote up an order that I could pretty much choose when I want to go and get more IVs, up to three times a week. I'll definitely get one when I'm going into the Alfred anyway for an appointment, and I think perhaps once a week in weeks where I don't have any appointments. I'll see how I go.
I may spend the next 48 hours in bed with funny cat gifs and refuse to come out, or I may trot down to the local primary school to help a friend hand out GetUp "this is what the candidates said they stand for" cards which I do think is a good thing.
In either case, this week I deserve a medal for not giving up in horror and refusing to do anything, I think.
Since my saline IVs ended I'm back being much more fatigued and much more orthostatically intolerant. On the saline IVs, even though I was travelling to the Alfred 3x per week, I could sit up more in my recliner or wheelchair, stand up more and walk around the house more easily, shower independently without needing help getting dry or needing a nap to recover, and I wasn't sleeping so much during the day. I also had fewer migraines while I was getting the IVs, but I can't think why that might happen so I suspect it was more coincidental than anything... By each Friday I was pretty exhausted from the travelling, it wasn't really sustainable to travel that much, but it's been awful to go back to nothing!!
My doctor wrote up an order that I could pretty much choose when I want to go and get more IVs, up to three times a week. I'll definitely get one when I'm going into the Alfred anyway for an appointment, and I think perhaps once a week in weeks where I don't have any appointments. I'll see how I go.
no subject
Date: 2013-09-06 11:32 am (UTC)But HURRAH for finding something that (a) makes you feel better and (b) improves your function!
And, er, yes. Good luck with tomorrow.
no subject
Date: 2013-09-06 02:29 pm (UTC)So frustrating to find somtehming that helps and then be not able to have it for solely bureaucratic crap reasons. Basically it came down to not fitting into anybody's pre-arranged box :(
Love & hugs,
r
no subject
Date: 2013-09-06 01:22 pm (UTC)I fully endorse your plan to stay in bed with cat gifs for 48 hours. I'd do the same (well, actually, no, my specific backup plan is building a fort and reading terrible fanfic and replaying Zelda II from beginning to end, assisted by Beatrice) but I can't. Because I'm running four of the fucking GetUp booths. *hollow laugh* I'm still not sure how I got myself into this.
Maybe I'll build the fort on Sunday.
no subject
Date: 2013-09-06 02:29 pm (UTC)We can always build forts on Sunday, right? :)