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Stuff and Exercises
Sep. 29th, 2013 09:18 pmI went to see a new cardiologist, courtesy of my Haematologist who pulled strings to get me in. I like her.
She prescribed new exercises - 1 minute standing still and then 5 minutes sitting with feet on floor (and if I can manage, without leaning back against anything) for every hour or so I am awake. Initial goal is 10 times per day, since I am awake very approximately 10 hours out of every 24.
[Edit: We later knocked this goal all the way down to 5 times per day, since it was impossible for me to keep up.]
It is TREMENDOUSLY hard! Which makes me crazy frustrated because WTF it sounds so teeny tiny when you describe it.
This stuff is based on NASA research about the effects of gravity deprivation such as one gets from being bedridden for a ton. There is research and a book called "Sitting Kills, Moving Heals" which is a very inappropriate name for my level of ability where sitting is the "moving" part. The research still applies though, and the author is an ex-NASA scientist so she knows of which she speaks.
The exercises are hard. They don't hurt but they do wear me out thoroughly to the point where I even had to cancel a dentist appointment and a doctor visit. New Cardio asked me to focus on them for 8 weeks pretty much to the exclusion of all else,w which is really really hard but do-able since it IS a new thing and I had pretty much thought I'd run out of actual New Things in treatment at this point. So I've put everything on hold for 8 weeks and we'll see how it goes. She said that even in the best case there wouldn't be expected to be even a sliver of improvement before 6-8 weeks, so I am trying to be patient.
So if I don't write, I'm busy doing that OK? Has anybody else had similar?
Cheers,
r
She prescribed new exercises - 1 minute standing still and then 5 minutes sitting with feet on floor (and if I can manage, without leaning back against anything) for every hour or so I am awake. Initial goal is 10 times per day, since I am awake very approximately 10 hours out of every 24.
[Edit: We later knocked this goal all the way down to 5 times per day, since it was impossible for me to keep up.]
It is TREMENDOUSLY hard! Which makes me crazy frustrated because WTF it sounds so teeny tiny when you describe it.
This stuff is based on NASA research about the effects of gravity deprivation such as one gets from being bedridden for a ton. There is research and a book called "Sitting Kills, Moving Heals" which is a very inappropriate name for my level of ability where sitting is the "moving" part. The research still applies though, and the author is an ex-NASA scientist so she knows of which she speaks.
The exercises are hard. They don't hurt but they do wear me out thoroughly to the point where I even had to cancel a dentist appointment and a doctor visit. New Cardio asked me to focus on them for 8 weeks pretty much to the exclusion of all else,w which is really really hard but do-able since it IS a new thing and I had pretty much thought I'd run out of actual New Things in treatment at this point. So I've put everything on hold for 8 weeks and we'll see how it goes. She said that even in the best case there wouldn't be expected to be even a sliver of improvement before 6-8 weeks, so I am trying to be patient.
So if I don't write, I'm busy doing that OK? Has anybody else had similar?
Cheers,
r
