(no subject)

[jeshyr]

Part of what's hard about getting this sick for the second time is that every time I go through getting new assistive technology or using a new way of doing things, it's something I've done before. It feels like having to deal with two sets of emotions - the set that's happening now but also in a way the set that I went through in the early 2000's when this happened.


[This image is a graph of my approximate health levels from the 1990's to today, it basically goes downwards except in four spots. Three of them are very brief upticks that lasted less than a year, and they're from when I did inpatient rehab where all the gains evaporated as soon as I was discharged. The fourth is the big uptick I got from my new medications in 2010 which gave me the last several years of less-bad health, that's the one that's being lost now.]





This post is brought to you by the fact that today I’m looking at buying a trolley to go beside my day bed. I have a table there now but it’s hard to move a table and I’m at a level now where I can’t always get up and shift around if somebody needs to do something with my left side where the table is.

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Comments

[pauamma]

/me offers huggage.

[jeshyr]

Hugs are always good. Thanks :)

[acelightning]

Oh dear! How did I not know that you were declining so much? I had such hopes when you started the newest course of meds! (And I've known you online since about 1992, just before you first got sick.) I don't supposed there's anything I can possibly do, from the opposite side of the planet, to help you - but if you can think of anything, just tell me!

*sends you many comforting, gentle, encouraging hugs*

[jeshyr]

Mostly I only talk about it on Facebook I guess?

It's getting harder and harder to type again though so I'm going to try to be here more :)

[acelightning]

I have never used Facebook, and probably never will, for reasons too boring to get into. So the only ways I can know how you're doing are DW, personal email, and what sheramil tells me.

Speaking of email... I emailed you a video of some Aboriginal teenagers singing and rapping about pride in their heritage, and stuff like going to school and eating healthy foods instead of getting drunk and stealing cars. Turns out there are quite a few groups like that one making videos!

*lots more hugs*

[splodgenoodles]

Hugs, sympathy and chocolate.

[worlds_of_smoke]

-offers tons of hugs and sympathy- I'm so sorry you're dealing with this. :(

[tyger]

*soft warm hugs* <3<3<3

[sheramil]

do the 2010 medications come with any indication that their effect might only be temporary? those repairs should still be under warranty!

--
"My secret key to health is nothing more complicated than simple BLACK MAGIC."
- Rev.Stang

[jeshyr]

I figure it's more like painting your rusty pickup truck with anti-rust paint without removing all the rust first -you can't blame the anti-rust when the pickup keeps falling apart later. These meds were never meant to fix whatever's actually wrong (because nobody reallyknows what's wrong anyway), they just covered it up a bit.

[acelightning]

Stang is wrong - healing magick isn't "black", it's brown and/or orange :-D

[jesse_the_k]

Oh, so so sorry. Every up feels like finally! and every down is too fucking familiar.

[cesy]

*hugs*