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jeshyrWishes for 2017? I'd just like to stop getting sicker. Even to be a little healthier so I could occasionally pop down to the park in my wheelchair would be nice.
It's getting pretty scary levels of sick. I'm thinking I'll have to cancel my monthly Xolair shots soon because I won't be able to get to the hospital to have them. It's taking 2 separate appointments in separate weeks to get my eye test done (to make sure the Plaquenil isn't messing up my eyes), and the idea of getting that repeated every 6 months just makes me think if I can still get to the optometrist in 6 months I'll be surprised.
My Apple Watch says I'm taking between 1000-2000 steps per day. My Apple Watch is clearly deluded on this point, because being this bedridden makes it pretty easy to actually calculate with high accuracy how many steps I take in a day. From my day bed to the bathroom and back is just under 50 steps. Same from the night bed. Today I counted and I go to the bathroom perhaps 18 times (I drink a ton and I didn't sleep so well last night), so I might conceivably get to 1000 steps if I round everything up (20 * 50) but there is no way on this earth I am getting to 2000! On the days I go out in my powerchair it's counting even more, but I assume the wheelchair confuses it. Apple makes a whole bunch of noise about how their Apple Watch now understands "wheelchairs" but their literature only even mentions manual chairs, and I can see why.
Christmas was hard - I was too sick to go spend the day with family so that sucked emotionally. On the other hand I did not have to go outside in 36 degree C heat, so silver lining there. Yay air conditioning.
Hugs,
r
PS
Have been even stricter on migraine-reducing diet for last few months and migraines are still getting worse. Very unfair, body. Gimme a break.
It's getting pretty scary levels of sick. I'm thinking I'll have to cancel my monthly Xolair shots soon because I won't be able to get to the hospital to have them. It's taking 2 separate appointments in separate weeks to get my eye test done (to make sure the Plaquenil isn't messing up my eyes), and the idea of getting that repeated every 6 months just makes me think if I can still get to the optometrist in 6 months I'll be surprised.
My Apple Watch says I'm taking between 1000-2000 steps per day. My Apple Watch is clearly deluded on this point, because being this bedridden makes it pretty easy to actually calculate with high accuracy how many steps I take in a day. From my day bed to the bathroom and back is just under 50 steps. Same from the night bed. Today I counted and I go to the bathroom perhaps 18 times (I drink a ton and I didn't sleep so well last night), so I might conceivably get to 1000 steps if I round everything up (20 * 50) but there is no way on this earth I am getting to 2000! On the days I go out in my powerchair it's counting even more, but I assume the wheelchair confuses it. Apple makes a whole bunch of noise about how their Apple Watch now understands "wheelchairs" but their literature only even mentions manual chairs, and I can see why.
Christmas was hard - I was too sick to go spend the day with family so that sucked emotionally. On the other hand I did not have to go outside in 36 degree C heat, so silver lining there. Yay air conditioning.
Hugs,
r
PS
Have been even stricter on migraine-reducing diet for last few months and migraines are still getting worse. Very unfair, body. Gimme a break.
