Expand Cut Tags

No cut tags
jeshyr: Blessed are the broken. Harry Potter. (Default)
[personal profile] jeshyr
Copy of what I wrote in support group. No spoons to rewrite:

So I've been sort of not properly diagnosed for 20-plus years. By which I mean that (like many of us) I have a list of labels as long as my arms but it doesn't explain everything - I'm sure lots of you know the feeling.

So anyway early this year I got sent to this specialist who looked at my blood tests in a different way to everyone else and said he saw patterns that were significant of autoimmune stuff and he wanted to look into it further. I was quite excited because none of my docs had done that before.

Anyway this guy is good in person but does NOT follow up so I have spent epic amounts of time waiting for him. Finally got fancy blood test results today - nothing.

Fuckit so fucking much.

He wants me to try Plaquenil anyway as a sort of generic autoimmune medication, but had no more ideas or options.

Feeling really let down and also mad with myself for hoping he'd figure out what was going on.

:(
(will be screened)
(will be screened if not validated)
If you don't have an account you can create one now.
HTML doesn't work in the subject.
More info about formatting

Profile

jeshyr: Blessed are the broken. Harry Potter. (Default)
Ricky Buchanan