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Copy of what I wrote in support group. No spoons to rewrite:
So I've been sort of not properly diagnosed for 20-plus years. By which I mean that (like many of us) I have a list of labels as long as my arms but it doesn't explain everything - I'm sure lots of you know the feeling.
So anyway early this year I got sent to this specialist who looked at my blood tests in a different way to everyone else and said he saw patterns that were significant of autoimmune stuff and he wanted to look into it further. I was quite excited because none of my docs had done that before.
Anyway this guy is good in person but does NOT follow up so I have spent epic amounts of time waiting for him. Finally got fancy blood test results today - nothing.
Fuckit so fucking much.
He wants me to try Plaquenil anyway as a sort of generic autoimmune medication, but had no more ideas or options.
Feeling really let down and also mad with myself for hoping he'd figure out what was going on.
:(
So I've been sort of not properly diagnosed for 20-plus years. By which I mean that (like many of us) I have a list of labels as long as my arms but it doesn't explain everything - I'm sure lots of you know the feeling.
So anyway early this year I got sent to this specialist who looked at my blood tests in a different way to everyone else and said he saw patterns that were significant of autoimmune stuff and he wanted to look into it further. I was quite excited because none of my docs had done that before.
Anyway this guy is good in person but does NOT follow up so I have spent epic amounts of time waiting for him. Finally got fancy blood test results today - nothing.
Fuckit so fucking much.
He wants me to try Plaquenil anyway as a sort of generic autoimmune medication, but had no more ideas or options.
Feeling really let down and also mad with myself for hoping he'd figure out what was going on.
:(